Day 13 - Happy 6 Month Birthday!

Nicholas turned 6 months old today! I never thought we would still be in the hospital on his 6 month birthday. But I am so thankful he is doing better.

This morning I got to talk to his cardiologist. She said that she thinks that the only reason his heart rate was so high is because of withdrawal symptoms from the Fentanyl. She said she does not think there is any issue with his heart at all. I asked if he would still need to continue on the heart medication for a while as the other doctor indicated; she said no and that he would be completely off of it by tomorrow!

They did say that he still has drainage from his chest tubes. Not nearly as much as in the beginning, but still significant. It has not decreased in the past 3 days. We will have to be here until this clears up.

He hates his new low-fat formula. Refuses to drink it. The nurse ended up putting some Splenda in it to help with the flavor. That worked for a while, but now he refuses to drink it even with the Splenda. It's been all day and he hasn't eaten a thing. I really wish he would take it because otherwise they will need to put his feeding tube back in. And obviously he would have to be eating to come home.