I can't believe Nicholas has been in the hospital for 3 weeks now. When we first found out he had to have surgery and would be here 3 days, I thought that was such a long time and would be so hard. Never could I have imagined it would've turned into this. I miss Nicholas being home so much. It's sad when I go home because there is his swing not being used; his empty play mat; I get out of the shower and usually see a smiling face greeting me from the baby papasan, but not now. I so wish he could come home already.
His chest tube output still has not decreased at all. Tomorrow is the day they want to do the pleurodesis. We are at least going to put it off a bit. We are just not ready to take that step yet and the surgeon said putting it off a few days wouldn't be a big deal.
I did get a chance to talk to his surgeon, Dr. B (who I really like), this afternoon and got a lot of my questions answered. I do feel a bit better about things. When I talked to Dr. J (another doctor) last week about the pleurodesis, she is the one who told me if the pleurodesis doesn't work that there is nothing else they can do. So this whole time since then, I've basically been having a huge anxiety attack. Well Dr. B tells me this afternoon that if the pleurodesis doesn't work, then they would try a thoracic duct ligation. Or they could possibly do another pleurodesis. So the pleurodesis isn't our last ditch effort as Dr. J made it seem.
I'm so glad that it's not the end of the line if it doesn't work. Honestly, it wasn't very nice of that doc to tell you there's nothing else they could do in that context. I'm so sorry you had to live through the 24 hours until the other doc clarified it!
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