Well, it looks like it may be tomorrow now that he gets his breathing tube out. I guess they want an air space around the breathing tube in the esophagus, so they know that when they take the breathing tube out that the esophagus isn't going to constrict and block his airway. Nicholas's doesn't have that air space. He said it could be due to inflammation, so they are giving him steroids today for that. It could also just be that the breathing tube is filling up all the space because his esophagus is not that big.
And the whole chyle thing, ugh. I guess now his output from his chest tubes is looking a bit milky. They are thinking that since they increased his feeds overnight, that his body was able to handle the small amount yesterday but not the larger amount. So I think they are going to put him back on the low-fat formula. They said in order for it to heal that it can't be producing the chyle.
He is getting more stable each day, Jamie. I know it feels so slow and must be so frustrating, but he's getting there, Jamie. Baby steps every day. Hang in there. We are all continuing to send our love and energy to you, Josh, Luke and Nicholas. Not a day passes where we aren't thinking of you and sending all the positivity we can.
ReplyDeleteTabitha